Part 3 · Living well with IBD · 11/22
What the guidelines say, what experience teaches, and how to find what works for you.
There is no single diet for IBD. The recommended basis for almost everyone: a Mediterranean-style diet, home-cooked, with little salt, sugar and ultra-processed food.
AGA 2024 and IOIBD guidelines
Many patients tolerate milk and cheese well: it really depends on the person.
Lactose intolerance does exist, a little more often when Crohn's affects the small intestine. Aged cheeses and yoghurts contain very little lactose.
If you are on an immunosuppressant or a biologic, avoid raw milk and raw-milk cheeses (especially soft cheeses), because of listeria.
Keep things simple while the flare lasts: cooked food, less tough fibre, small meals, and plenty to drink. Then bring foods back in.
Fibre is no longer off-limits: vegetables and fruit cooked, peeled, blended and well chewed. Avoid skins, seeds and tough fibre.
A low-FODMAP diet may bring relief, for a short time and with a dietitian.
At first, write down what you eat and how you feel. You will spot your problem foods, because everyone reacts differently.
| Day | I ate | How I felt | Verdict |
|---|---|---|---|
| Monday | Lentils | Bloating | Try again |
| Tuesday | Fish, rice | Nothing | OK |
| Thursday | Raw salad | Pain | Later, cooked |
| Saturday | Yoghurt | Nothing | OK |
A food you tolerate badly today, during a flare or just after, may suit you very well in 6 months. Try it again in a small amount, later on.
Avoid cutting out too many foods: that opens the door to deficiencies and malnutrition.
Nutritional drinks for 6 to 8 weeks can put Crohn's into remission, especially in children. Also useful before surgery.
A specific diet combined with a nutritional drink, suggested by the European guidelines for mild to moderate Crohn's flares, including in adults.
Always with your gastro and a dietitian. The “miracle” diets found on the internet have not been proven.
Food remains a very complex subject: everyone has their own genetics (the lactase gene, metabolism genes such as APOE…), their own microbiota, their own digestive enzymes, and a very personal relationship with food. So there is no rule that works for everyone. The pointers on this sheet are a starting point, not a list of forbidden foods. Listen to your body, keep enjoying your food, and let your diary guide you.